World thalassemia day 2023

Thalassaemia is an inherited disorder characterized by reduced levels of oxygen-carrying proteins, known as haemoglobin, and fewer red blood cells than normal. This condition can lead to symptoms such as fatigue, weakness, and stunted growth. While mild forms of the disorder may not require treatment, more severe cases often necessitate blood transfusions or stem-cell transplants from a compatible donor. Understanding the nature of the disorder, its mode of inheritance, and its effects on the body is crucial in planning appropriate treatment options. To raise awareness about this disease, As we prepare to celebrate World Thalassaemia Day and increase awareness about this condition, here are some key details to keep in mind: This year, World Thalassaemia Day will be commemorated on May 8. On this day, organizations and communities around the world organize workshops and programs to raise awareness about the disorder and explore potential treatment options. Theme: The theme for this year's World Thalassaemia Day is 'Be aware. Share. Care.' This theme serves as a universal call to collaborate with global communities in spreading awareness about Thalassaemia and the available treatment options. History: In 1994, Panos Englezos, President and Founder of the Thalassemia International Federation, established World Thalassaemia Day in memory of his son George and other Thalassaemia patients who displayed great courage in their battle against the disease. Since then, May 8 has been...

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8th May is observed as World Thalassaemia Day, a global event that is observed every year to promote awareness about this genetically inherited condition. Let us know more about this day, in this post. Thalassaemia is an inherited autosomal recessive disorder that is acquired by a person genetically from either a single parent or both. The observance of International Thalassaemia Day on May 8th is to remember the patients of thalassaemia who have succumbed to the condition. Moreover, it is also observed as a celebration, especially for the patients who are giving thalassaemia a tough fight to live a quality life. So, what is thalassaemia? It is a genetic disorder associated with haemoglobin, which is a protein rich in iron and available in red blood cells. Haemoglobin works as an oxygen transporter to the blood. Hence, if someone has thalassaemia, they would have less haemoglobin than normal, which can make life difficult. Thus, thalassaemia patients require multiple blood transfusions regularly. Reports state that over 280 million people worldwide are suffering from thalassaemia. Among them, over 5 lakh people are going through a severe form of the disease. Though thalassaemia disease is prevalent across globe, it is said to be most common in the below mentioned ethnic groups, such as; • Italian • Greek • Middle Eastern • South Asian • African What’s Inside • • • • • • Symptoms of Thalassaemia Some thalassaemia major symptoms include; • Anaemia • Fatigue • Dizziness • Sho...

By Daphne Clarance: World Thalassemia Day is observed on May 8 every year. Thalassemia is a blood-related disorder that affects millions across the globe, yet it is underdiagnosed due to several reasons. Thalassemia is characterised by faulty haemoglobin synthesis and red blood cell production in the body, meaning that a thalassemic patient would require long-term blood transfusions to sustain life. WHAT IS THALASSEMIA? It is a genetic disorder, which is inherited by children from their parents. Thalassemia is caused by the lack of genes or errors in genes that are responsible for producing haemoglobin (a protein in red blood cells). It is further subdivided into minor, major and intermediate types of thalassemia based on the genes' alpha or beta globin state. Depending on the genes, the types of treatment are then further decided on the severity of the disorder. IS THERE AWARENESS ABOUT THALASSEMIA? Various studies conducted across the country have revealed that persons with a positive family history of thalassemia have somewhat better but still incomplete knowledge about the disease, whereas others are grossly unaware of this perturbing disease, with no idea that this is genetically transmitted and more importantly, that it can be diagnosed before birth. ALSO READ | "Despite over ten thousand children being born with thalassemia condition every year in India, the measures to curb it are not sufficient. On average, I come across 30-40 patients suffering from minor thalass...

“Thalassemia may slow you down, but it can’t stop you from achieving greatness.” Every year on May 8, there is a celebration known as World Thalassemia Day to bring attention to this genetic blood condition that affects the production of hemoglobin, a protein that transports oxygen in the body. The genetic disease thalassemia can be passed from parents to their offspring. This day is observed to educate people about the importance of early detection, prevention, and management of thalassemia. If neglected, thalassemia can result in anemia, tiredness, jaundice, and other problems. Thalassemia patients’ quality of life can be enhanced by early diagnosis and treatment. Some common activities that take place on World Thalassemia Day include: • Blood donation drives • Educational event • Fundraising event • Social media campaign • Lighting up landmarks • Government initiatives to support Thalassemia The day creates awareness to honor the struggle of patients suffering from the disease. Thalassemia is an inherited blood disorder that doesn’t let the body create enough hemoglobin. The disease weakens and destroys the blood cells. The day is celebrated across the globe to honor the efforts of doctors, scientists and medical staff for improving the lives of people suffering from this disease. There are different types of Thalassemia, and the treatment of this disease depends upon the type and severity. The effects of this illness might vary, sometimes being moderate, severe, or eve...

🔊 Listen to this World Thalassemia Day is an annual global healthcare event observed on May 8 to increase public awareness of thalassemia. This severe genetic blood disorder affects millions of people worldwide. The day aims to promote prenatal screening, prevention, counseling, management, and treatment of thalassemia in a patient-focused approach. Local and international organizations, patient associations, public authorities, and healthcare professionals come together to support and encourage those affected by the disease. The significance of May 8 dates back to 1994 when the Thalassemia International Federation (TIF) observed the day in memory of George Englezos, the son of TIF’s founder, who died due to thalassemia. Today, World Thalassemia Day is recognized globally to spread awareness and promote early diagnosis and treatment of thalassemia. The theme for World Thalassemia Day 2023 is- “Strengthening Education to Bridge the Thalassaemia Care Gap: Be Aware. Share. Care.” This theme emphasizes the importance of enhancing education and awareness to address the gaps in thalassemia care. To observe World Thalassemia Day 2023, let’s learn and create more awareness about thalassemia. What is Thalassemia? Thalassemia is a genetic blood disorder that impairs the production of healthy RBCs (red blood cells) and hemoglobin, which are responsible for carrying oxygen throughout the body. Alpha and beta are the two types of thalassemia. Depending on how severe thalassemia is, thi...

Every year, World Thalassemia Day is observed on May 8 to raise awareness about thalassemia, a chronic blood disorder, among the public and policymakers. Launched by the Thalassemia International Federation, the day also aims to promote and strengthen the morale of those who have battled the fatal disease for years. What is thalassemia? Thalassemia is an inherited genetic hemoglobinopathy, a group of disorders that lead to defective production of haemoglobin synthesis in the body. This results in low production of red blood cells and a lack of oxygenated blood supply to the body parts, explained Dr Preetam Jain, Medical Oncologist, Bhatia Hospital, Adding that thalassemia is an inherited blood disorder, meaning at least one of the parents must be a carrier of the same, the expert said that it is caused by “either a genetic mutation or a deletion of certain key gene fragments.”“There is diminished or absent production of globin chains. This results in imbalanced globin chain production, which leads to tetramers and chronic hemolysis (premature destruction and shortened red blood cell life span),” he told While some of the common symptoms include anemia, fatigue, enlarged liver and spleen, growth impairment, skeletal deformities, leg ulcers and infections, hemolytic facies, frequent transfusions, and iron overload, experts pointed out that these can vary. “Additionally, anybody can develop this genetic disease, but those with a family history have a higher risk. It is seen i...

The Theme May 8, 2023 is International Thalassaemia Day. The theme of the event this year is “Strengthening Education to Bridge the Thalassaemia Care Gap”. By maximizing the knowledge and skills of every person affected by thalassaemia and the people who care for them, we can achieve positive changes in health behaviours, health outcomes and quality of life, and reduce the disease burden for patients and the society. Understand Thalassaemia Reliable and easy-to-read disease information can not only make you more aware of thalassaemia, but can also shed light on multiple aspects regarding its prevention, management and treatment. This is why our series of patient information leaflets grows bigger this year with 2 brand new additions, available in many languages! Unlock Education Watch unlimited videos on demand from world-renowned experts on the soon-to-be-launched TIFLIX platform, learn about Jo’s life journey with β-thalassaemia in TIF’s brand new animated video, and upgrade your knowledge on thalassaemia care and management by taking a free, online course at the TIF e-Academy!