World thalassemia day 2023 theme

World Thalassemia Day, marked on May 8, is a prominent event focused at raising awareness about Thalassemia, a hereditary illness characterized by insufficient production of hemoglobin, a critical protein responsible for oxygen delivery in the bloodstream. This genetic illness causes low quantities of oxygen-carrying proteins in the blood, impacting the health of those who are affected. The primary goal of this day is to increase awareness and understanding of this blood illness while also showing sympathy with individuals who suffer from it. World Thalassemia Day 2023 – Theme The theme of the 2023 International Thalassemia Day is “Strengthening Education to Bridge the Thalassemia Care Gap,” which is intended to increase the awareness and knowledge of those affected by Thalassemia. The goal is to eliminate disparities in Thalassemia care by focusing on improving patients’ abilities and knowledge. The primary focus is on empowering people to better manage their illness by increasing their awareness and understanding of the disease. World Thalassemia Day 2023 – History The Thalassemia International Federation (TIF), a non-profit organization that represents individuals and families affected by Thalassemia all over the world, created the first World Thalassemia Day in 1994. Thalassemia International Foundation (TIF) was created in 1986 by Thalassemia sufferers, their parents, and Mr Panos Englezos from the United Kingdom, the United States, Greece, Italy, and Cyprus. The day ...

World Thalassemia Day 2023: Thalassemia is an inherited condition in which blood oxygen-carrying proteins, also called hemoglobin, and red blood cells are lower than normal. This further leads to tiredness, weakness and slow growth of the body. While mild forms of the condition may not require treatment, severe forms may require a blood transfusion or a donor stem cell transplant. It is important to understand the condition, how it is inherited and how it affects the body so that you can plan your treatment options. World Thalassemia Day is celebrated every year to raise awareness of the disease. Thalassemia is a genetic blood disorder that affects the production of hemoglobin, the protein that carries oxygen in the blood. Hemoglobin is made up of two types of proteins, alpha and beta globin. People with thalassemia have a mutation in one or both of the genes responsible for the production of alpha or beta globin, resulting in reduced or no production of one or both types of globin. This leads to a lack of hemoglobin, which causes anemia and other related complications. History: Panos Englezos, president and founder of the International Thalassemia Federation, established this day in 1994 in memory of his son George and other thalassemia patients who courageously fought the disease. Since then, World Thalassemia Day has been celebrated on 8 May every year. In 1994, the Thalassemia International Federation (TIF) proclaimed May 8 as International Thalassemia Day. Theme: This...

For the global thalassaemia family, the 8th of May constitutes a very special day as it is dedicated to both commemorate the thalassaemia patients who are no longer with us but are always close in our heart and to celebrate all those patients who are alive and fighting everyday for their right to a better quality of life. On this special day, every year, TIF focuses on a different theme that intervenes with the quality and appropriate treatment of patients and impacts their quality of life. • 2018- “ Thalassaemia past, present and future: Country practices, progress and growing recognition of patients’ rights” • 2017 – “Get connected: Share knowledge and experience and fight for a better tomorrow in thalassaemia” • 2016 – “Access to safe and effective drugs in thalassaemia” • 2015 – “Enhancing partnership towards patient-centred health systems: good health adds life to years!” • 2014 – “Economic Recession: Observe – Joint Forces – Safeguard Health” • 2013 – “The right for quality health care of every patient with Thalassaemia: major and beyond” • 2012 – “Patients Rights Revisited” • 2011 – “Equal Chance to Life”

Be Aware . Share . Care . The International Thalassaemia Day 2023 highlights the empowering force of education and its association with appropriate and quality care of this disorder. Building on last year’s successful theme, the 2023 campaign, entitled ‘BE AWARE.SHARE.CARE.: Strengthening Education to Bridge the Thalassaemia Care Gap’ , takes a further step ahead and focuses on the need for improved access to quality, lifelong thalassaemia education for people living with the disorder and healthcare professionals involved in their care. By maximizing the knowledge and skills of every person affected by thalassaemia and the people who care for them, we can achieve positive changes in health behaviours, health outcomes and quality of life, and reduce the disease burden for patients and the society! Better Education for Better Care Thalassaemia affects about 300 million people worldwide, with about 500,000 having a severe form of the disease. 80% of these people live in low and middle-income countries (LMICs) and face many and multiple unmet needs and persisting challenges with regards to the health, social and other care they receive. We need to help change that! People living with thalassaemia need access to ongoing, disease-specific education to better understand their condition and assert their basic right of equal access to appropriate care. Thalassaemia-treating physicians must know how to detect early and accurately diagnose the condition, interact effectively with com...

Table of Contents • • • • • • • • • • • • • • • • • What is Thalassaemia? Illustration showing malformed red blood cells in thalassemia. What is the theme for the year 2023 for world Thalassemia day? Theme for the world Thalassemia day is “Be alert. Share. Education must be strengthened in order to close the gap in thalassemia care.” Types of Thalassaemia : There are two main types of thalassaemia: alpha and beta thalassaemia. Alpha thalassaemia occurs when there is a defect in the genes that control the production of alpha globin, while beta thalassaemia occurs when there is a defect in the genes that control the production of beta globin. Symptoms of Thalassaemia : The symptoms of thalassaemia vary depending on the type and severity of the condition. Mild cases may not have any symptoms, while severe cases can cause significant health problems. Symptoms of thalassaemia can include fatigue, weakness, pale skin, jaundice, and delayed growth and development. Common symptoms of thalassaemia include: • Fatigue • Weakness • Pale skin • Shortness of breath • Jaundice • Enlarged spleen • Bone deformities • Growth failure Young woman using a machine to conduct a medical test in a laboratory Diagnosing Thalassaemia : Thalassaemia can be diagnosed through a blood test that measures the levels of haemoglobin in the blood. Additional tests may be performed to determine the type and severity of thalassaemia. Treating Thalassaemia : There is currently no cure for thalassaemia, but ther...

The body of a person suffering from thalassemia makes less haemoglobin than that of a normal person, which can cause anaemia and other health problems. Our body’s red blood cells don’t function properly due to the deficiency of haemoglobin. World Thalassaemia Day is observed to honour the struggle of patients suffering from this disease by spreading awareness about thalassemia being a blood disorder. More importantly, World Thalassemia Day helps patients lead a normal life by dealing with the social stigma attached to this disease. This day also debunks several myths related to thalassemia and helps the patients lead a normal life by dealing with the social stigma attached to the disease. World Thalassaemia Day will be observed on May 8.

Highlights • A person with thalassemia can have yellow or pale skin • Thalassemia can be prevented • You should check for thalassemia before planning pregnancy World Thalassemia Day is observed on May 8. This day is meant to raise awareness about World Thalassemia Day: Are you at risk of thalassemia? Types of thalassemia Type of thalessemia is dependent on the number of gene mutations that you inherit from your parents. It is also dependent on which part of Those at high risk of thalassemia are the ones who have thalassemia in family history. Thalassemia is also more common in people of Mediterranean and Southeast Asian ancestry, and in African-Americans. Also read: Alpha-thalassemia There are four genes involves in making alpha haemoglobin chain. You get two genes from each of your parents. If you inherit one mutated gene, you are not going to have any signs or symptoms of thalassemia. You can pass it on to your children in case you are carrier of the disease. If you inherit 2 mutated genes, you are going to experience mild symptoms. In case inheriting 3 mutated genes, the symptoms are going to range from moderate to severe. The case of inheriting 4 mutated genes is rare. These fetuses have severe Two genes are involved in making of beta haemoglobin chain. You get from gene from each of your parents. In case you inherit one mutated gene, you are going to have mild signs and symptoms. This condition is known as thalassemia minor. If you have 2 inherited genes, the symptoms...