Epilepsy day 2023

• • • • • • • • • • • • Our Impact • Impact Reports • • • Epilepsy Genetics • Infantile Spasms • Post-Traumatic Epilepsy • SUDEP • • Epilepsy News • CURE Epilepsy in the News • • • • Webinars • • • UNITE to CURE Epilepsy 2022 • CURE Epilepsy’s 25th Anniversary Gala • • • • • How to donate • Monthly giving • Tribute gifts • Major gifts • Online giving • Corporate giving • Planned giving • Stock donations • Matching Gifts • Workplace giving • • Shop • CURE Epilepsy Store • • • Understanding Epilepsy • • • • • • • • • Medication Access • Diagnosing Epilepsy • • • • • • • • • • Epilepsy Surgery • • • • • • Clinical Trials • • • • • • • Grants Awarded • • Greetings Epilepsy Community, February has arrived, and as we approach February is also Black History Month. This month, CURE Epilepsy is highlighting some of the many Black individuals who are making a meaningful impact within the epilepsy community. We started this week by spotlighting Lastly, as we look back at what CURE Epilepsy has accomplished over the past 25 years, we are also looking forward. As we map out our plan for the future, it is essential that we understand what is important to people with epilepsy, parents and caregivers, researchers, and everyone else who engages with the community. In the coming weeks, you will see an email invitation to participate in a short survey. I would be incredibly grateful if you could take 15 minutes out of your day and share your thoughts with us. With a commitment to inspire hop...

They tell me that my epileptic seizures last about two and a half minutes. I have been observed freezing, like in a game of statue. A frozen body with a frozen stare. I’m told that the electrical activity in my brain unravels until it becomes a miniature tempest. I envision it like a solar storm that knocks out communications on Earth, the way my body knocks out communications between my limbs and my nervous system. My limbs, having lost the script read out to them continuously by my nervous system, give up on instructions from biology and surrender to gravity. I collapse. Then the seizing. From a video recorded during an all-day observation at home, I can see what it looks like. My face, having lost all trace of life, responds jerkily to the motion of my stiff, shaking body. A body possessed by a shuddering machine, like a tree shaker — a machine without compassion. My face and lips go blue as my body almost seems to forget what it needs to do to keep me alive. After what seems like an eternity to those observing me, a period of calm. As if someone rebooted a misbehaving computer. I come to, hazy in my consciousness. It is a strange disability that I can scarcely detect or retain in memory. A mute person is reminded of their disability anytime someone speaks. A person with an amputated leg perceives it each time they move. I have a condition that when it is in full body-seizing flare-up, everyone but me can see. One whose manifestations traumatize my parents. All I get ar...

History of National Epilepsy Week There are records documenting and describing epilepsy since ancient Greece, and it was believed for centuries to be the work of a devilish creature or even a punishment from God. However, thanks to modern science and medicine, it is clear that epilepsy is caused by a combination of multiple neurological disorders that trigger seizures. These seizures are episodes of extreme shaking that can last for a few minutes and can even lead to death if not attended to. For an epilepsy diagnosis, there has to be a continuous discharge in the brain that provokes these seizures. There is no clear cause of epilepsy, but brain trauma, surgery, stroke, tumors, and even complications during birth can be catalysts for the development of the disorder. It’s vital to clear the probability of the patient simply going through withdrawals or extreme fatigue to diagnose epilepsy. A doctor can diagnose it by doing an E.E.G. — an electroencephalogram — or performing blood tests. Epilepsy is treated using a medication, and in 69% of cases, the seizures are monitored effectively. However, in some cases, patients require surgery to get better. Epilepsy is prevalent in the elderly. About 50 million people have had epilepsy but got treatment. In some places in the world, people with epilepsy are not legally allowed to drive.

For the International Epilepsy Day, the Do not hesitate to come and visit us on Monday 13 February from 10am to 12pm, and from 2pm to 4pm in the hall of the Robert-Debré hospital, in Paris. A l’occasion de la Journée internationale de l’épilepsie, organise un stand au sein de l’hôpital Robert-Debré le 13 février prochain afin de sensibiliser le grand public à l’épilepsie et de bousculer les préjugés . Nous donnerons des informations sur l’épilepsie et les activités de notre Centre de référence et vous pourrez participer à un quiz qui testera vos connaissances sur cette maladie avec des petits cadeaux à la clé. N’hésitez pas à passer nous voir lundi 13 février de 10h à 12h et de 14h à 16h dans le hall de l’hôpital Robert-Debré, à Paris. The LFCE will Organize a webinar for the general public on February 13 at 6:30 p.m. to show patients and their families that things are changing around epilepsy. New treatments, sometimes more targeted, are being marketed, new safer and less ‘aggressive’ surgical techniques are being developed, and tools based on artificial intelligence are helping patients and medical teams. This webinar will be an opportunity to discuss these topics, sources of hope for patients La LFCE organisera un webinaire destiné au grand public le 13 février à 18h30 pour montrer aux patients et à leur entourage que les choses bougent autour de l’épilepsie. De nouveaux traitements, parfois plus ciblés sont commercialisés, de nouvelles techniques chirurgicales plus sûr...

EVERY YEAR, International Epilepsy Day is observed on the second Monday of February. It is an opportunity to raise awareness of epilepsy, its diagnosis and treatment. It is an annual event organized by the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE) to raise awareness about epilepsy and its impact on individuals, families and communities around the world. According to World Health Organization (WHO), epilepsy is the most common chronic brain disease and affects people of all ages. More than 50 million people worldwide have epilepsy, nearly 80 per cent of them live in low- and middle-income countries. Around 50 million people around the world are affected by this disease. International Epilepsy Day 2023: Symptoms Of Epilepsy As per WHO, seizures are the main symptom of epilepsy. Symptoms differ from person to person and according to the type of seizure. For focal seizures, common symptoms include alterations to sense, taste, smell, sight, hearing or touch, dizziness, tingling and twitching of limbs. Whereas, focal unaware seizures involve loss of awareness or consciousness. 6 Days 6 Asanas Challenge: Take Part In Jagran's International Yoga Day Challenge And Win Exciting Prizes International Epilepsy Day 2023: Significance It is a special event which promotes awareness of the disease in more than 130 countries every year. The goal of this day is to increase awareness and to make more and more people know about the causes, sym...